Things Not Groin The Way I Hoped
That’s not a typo in the title. You’ll see in a minute. A couple of posts ago I wrote an update to my ongoing liver problems. I talked about how I had a new nurse practitioner that went to bat for me with my liver doctor to get the ball rolling on a living liver transplant. If you look in the comments below that post you’ll see that I got good news about how my doctor waived my MELD score requirements and referred me for transplant. Several days later he asked me to come in to see him to discuss the way forward. For some reason I got a foreboding feeling about this, though I didn’t know why. Turns out that feeling was right. Monday, he explained to me that he had talked to the doctor from the transplant center and they turn down the referral for the transplant.
They evaluated my condition and determined that the risk of the surgery outweighed the risk of continuing in my condition at it’s present level of severity. I tried to explain that I would rather take the risk of dying than to continue to live this way. That’s when they hit me with a truth I could not deny. It was not only a risk for me, it was a risk for my sister who would be making the donation. While her risk would admittedly be lower, there was still some to be had. Several donors had died due to complications since they recently started doing this procedure. I couldn’t argue with that. Of course I would not want my sister to be put at unnecessary risk. So that’s, as they say, is that.
Well, not really that. To my doctor’s credit, he offered an alternative to try and help me. My biggest problem is the fact that blood does not flow easily through my hardened liver. In an attempt to compensate for that, my body has created what they called shunt arteries that allow a good amount of the blood to bypass the liver so it can keep flowing. Unfortunately, when that happens, ammonia is not filtered out of my blood by the liver and causes the hepatic encephalopathy that I’ve talked about before. So the doctor recommended what they call an embolization of the renal AV shunt. In non-doctorese that means they are going to stick some tools up in my blood tubes and close off the bypass shunt so that blood will be forced to go through the liver. My doctor says two things could happen after this. One, it could cause my symptoms to get better by forcing all the blood through the liver for filtering. Two, it could cause my liver to fail even further because it won’t have the bypass to take the load off of it. Of course, option one would be the desired outcome, but option two also has positive possibilities. If the liver starts to fail even more then I could meet the transplant centers requirement for the liver replacement. Guess we’ll see what happens on Friday, because that’s when I’m having it done.
What? The typo that isn’t a typo? Oh yeah, almost forgot. When they stick whatever probes or grabby knifey things up inside me, guess where they are going in? Yup, the groin. I’m gonna get stuck in the junk. Well not specifically the junk, but in a very close neighborhood. Hopefully, I’ll be blissfully asleep for all that. That hasn’t been clearly expressed. I better be! Anyway, sorry for all the wonderful visuals on Christmas Eve but while this surgery is not high risk, there is some associated with it. If you never hear from me again then you’ll know I probably shuffled off this mortal coil with a metal coil stuck in my bizzness.
18 thoughts on “Things Not Groin The Way I Hoped”
Aww, Boo Boo. So much crappiness. Hoping for all good things for you and your junk in 2020. Miss you! ~Linda, Half a 1000 Miles
Thanks Carolina! Miss you too!
That so completely sucks I don’t even know where to begin. My heartfelt prayers/good wishes that this goes whichever way is the ‘easy’ way for you, with the appropriate end results. Please get some enjoyment out of this Holiday season – Hopefully Santa will bring you better news.
Thanks Barbara! It’s not going to ruin my Holidays. I’m a hell of a lot better off than I was a year ago at this time when I didn’t know what was going on. I’m used to the set backs now.
I don’t especially like your options, but I completely understand why you’re willing to take this particular risk on Friday. I applaud your “guts” in going forward, and hope your groin survives the procedure! Sending all positive vibes your way. You deserve to get your life back, and you will!
Me and my groin thank you!
I sincerely hope against that finale, Arionis, there is much legend left to tell! Best wishes, and remember – in the meantime – to make this the best Christmas ever. And the next one even better. Good wishes, brotha!
Thank you for the good wishes! Had a great Christmas and plan on having more. Hope yours was good as well.
While I’m shuddering on your behalf for the junk adjacent procedure, I’m glad to see your sense of humor is intact. The whole situation is frightening … and laughing is the only medicine that helps. Please know we’ll all be sending good thoughts and healing vibes your way. Keep us posted!
Thank you. My junk emerged undamaged. Humor is my only defense against going crazy with all this shit going on. What is weird though, is that I usually am limited to written humor as I have a tad bit of social anxiety when in comes to talking out loud with people I don’t know. However, for some reason I was cracking joke after joke as they were preparing me for the surgery. I’m sure some of them bombed as I could catch a glimpse of my wife rolling her eyes at times, but what are you supposed to do while a nurse is shaving your junk area? I opted out of awkward silence this time.
Hope you’ve been living it up this week so you can enjoy your quiet down time and recuperate properly afterward. Doesn’t sound like a whole heck of a lot of fun, but I’m betting neither is living the way things are. So good vibes for the surgery itself and for positive outcomes down the road. And don’t worry about the groin aspect – actually, loads of surgeries and other procedures start there because it’s an excellent and safe entry point. It’s weird of course but you have so much else going on it’s low on the list of real worries. Rest up but do keep us posted when you can.
Thank you for the good vibes. They helped. I’m not sure if you are a groin guru or not but you were right. Once I knew the merchandise was safely watching from the sidelines, I was able to relax. I was a little freaked at first because they didn’t knock me all the way out. But they gave me enough of the good stuff to have me feeling just fine. I actually got to watch what was going on inside my blunderland of a body because they had this stadium size jumbotron monitor on the wall.
Wow. I hope that didn’t put too much of a damper on Christmas and that you’re doing better now. I’ve been a bit too lax in keeping up on things and so at this point you should be in recovery. And while it sounds like both possibilities had potential benefits–I know the second possibility wouldn’t be ideal but I’m a glass-half-full kind of guy–I hope your symptoms are getting better.
And that your junk isn’t too sore.
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I put it out of my mind on Christmas and only worried about it after. I am home now and recovering. The surgery itself ended up being a little more complicated than they had planned on, requiring it to take a little longer. I don’t care how excited a doctor is when he says this but I don’t think it’s ever a good thing to hear, “You are an unusual case.” I won’t bore you with the details but did you ever see the Seinfeld episode where Kramer drops a Junior Mint into a guy when they are observing his surgery from the observation booth? That’s how I felt, minus the delicious chocolate covered minty treat. Several other doctors stopped by to watch the big video game.
Now we just wait to see if option 1 or 2 will be the outcome. While I would like the immediate relief of option 1, option 2 also has a long term benefit of getting me to my ultimate goal of a new liver. Guess we’ll see what we see.
I have also been lax on reading blogs. I’ll get caught up soon.
Glad to hear the surgery went well! Hopefully, the outcome is a good one.
Thank you! Still evaluating the results. I’m sure I’ll be posting about it sooner or later.
As I am getting caught up, this is all happening in one day for me. I see you posted several times after this, so that is the good news.
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Yup! I failed to die. The only thing I am proud of failing.