All the posts related to my liver issue.
Thought I would give everyone an update on my health situation. This will be short and quick. No videos, no pictures, not even a mention of hiking! Well, except that previous sentence. At the end of the month it will be a year since we came to Texas to pursue a liver transplant. A few days ago I got the good news that the cancer exception points were added to my MELD score and I am up in the top…
Evidently there are a few of you out there that still want to know about the ongoing saga that is my health. Well, there is good and not so good news. Here’s the latest skinny. When I last wrote about this saga I explained that the timeline we had hoped for was not going to be as quick as we wanted. Boy, did I understate that. Also, we were still hoping for a living liver transplant from my sister. Those…
I saw my new transplant doctor in Dallas last Thursday. Here’s a little snippet of the conversation: Doctor: So, what can I do for you today? Me: Hook me up with a liver transplant. Doctor: OK, that’s our end goal here. Me: Cool, so can we get this done like next month? Doctor: Whoa! Pump the brakes there! I’ll spare you the rest of the conversation. Basically, things are not going to progress as quickly as we hoped. The doctor…
I’m Iron Man! Oh wait, no, that was Tony Stark. I’m Radioactive Man! Yesterday, my cancer doc implanted a gamma radiation pellet in my liver to kill that pesky tumor that has taken up residence. Soon after the surgery I had to get on Facebook and post about it of course. This is what I said: So far, no manifestations of super powers. I do have restrictions because I am now actually emitting low levels of radiation. I have to…
I’ll tell you when. When it bumps my priority level for a liver transplant into the stratosphere! The scene earlier today: Doctor: So, why are we seeing you today? Arionis: Have you seen my latest MRI results? Doc: Let me look at that right now. *clickity clack clack click* Oh, you got cancer. Ari: Yup. Doc: Well then, remember all the times you pushed us to do a living liver transplant and we said no because you weren’t sick enough…
EDIT (08/29/21): I published this a few days ago but I am going to update it due to a comment I got from Rebecca (see below.) I think not calling it the BIG C and referring to it as the little c would be much more appropriate. I can’t change the title because it would mess up the original URL of the post, but I am going to change it in the body of the text. Thanks Rebecca! I’ve written…
This small cog is being removed from the “normal” machine known as life and being installed in an “alternative” machine. This machine is going to allow us to live the rest of our lives for us and not for anyone else. We’ve given all we are going to for “them”. Now is OUR time! The machine this small cog is getting installed in may be figuratively described, but it is also literally a machine! You’ve seen it already, haven’t you?…
If you spend time in the outdoors, eventually something will go wrong. It’s a law of nature. But if you survive, those epic failures become the best stories! We’ve all read about amazing accomplishments in the wild, but now it’s time to tell us about the not-so-great times and what you learned from them. Share your best #EpicTrailFail stories on your own page, include this paragraph as a header, and then provide a link in the comments [here] or [here]….
That’s not a typo in the title. You’ll see in a minute. A couple of posts ago I wrote an update to my ongoing liver problems. I talked about how I had a new nurse practitioner that went to bat for me with my liver doctor to get the ball rolling on a living liver transplant. If you look in the comments below that post you’ll see that I got good news about how my doctor waived my MELD score…
This is not much of a post. It’s been a bit since I whined about my medical problems so I thought I would give y’all a small update. I’ve been languishing in an oxymoronic purgatory, waiting to get worse so I can get better. I had to make another change in medical professionals treating me. I am still seeing the same liver doctor but I changed to a different nurse practitioner. The NP does most of the hands on interaction…